T21: Blogs and Resources on Down Syndrome

Here is post number one in the T21 series!

I wanted to start out with a list of blogs and resources. Why? Because that is the very first thing I googled one year ago when we first began our homestudy. We received a list of special needs to clarify what we were and were not open too. This is something that is going to look for different for every family. These online sources may also be good for sharing with family and friends.

However, simply not knowing what some of the diagnoses on this list means or entails leaves you feeling nervous and uncertain. What we thought we were open to 2 or 3 years ago before diving into adoption and researching is totally, completely different than our perspective right now.

This listing will be updated and edited as time goes on. Think of it as a permanent list of resources that you can bookmark or share. You can even add your own resources. There are so many factors when it comes to Down Syndrome. There are developmental, social, and medical concerns that go beyond general health and wellness. There are short-term and long-term matters to consider. There’s also a heaping pile of misinformation regarding the people living with an extra chromosome.

In the case of adoption, we also have to remember there is another layer of implications due to individual circumstances.

First and foremost: What is your best resource? It’s who, actually. A person with Down Syndrome and/or their family. Every person is going to be unique and every family is different. Seeking out a few people either online or locally to connect with will make all the difference. Community is everything no matter who you are or what you’re doing! Never underestimate this invaluable resource. 

Another great resource? Knowledgeable doctors or therapists. Taking into account that the perspective of these resources are medically focused – reach out to them. They are a good place to start when you want to seek out local support or to find out about the nearby therapists, networks, and specialists you’ll have access too.

 

*To Have Your Own Blog or Link Added Just Leave a Comment or Send a Message!*

Blogs to Read

Down With Jax

Nothing Down About It

Enjoying the Small Things

Sarah Ellen Ely

Noah’s Dad

Don’t Be Sorry

Down Side Up

 

Adoption

Reece’s Rainbow – International Special Needs Adoption Listings and Advocacy

National Down Syndrome Adoption Network

The Mighty – 6 Tips to Consider When Planning to Adopt a Child with Down Syndrome

No Hands But Ours – Most Frequently Asked Questions About Adopting a Child with Down Syndrome

Rainbow Kids – International Special Needs Adoption Listings – Down Syndrome

Created for Care – Weekend Retreats

Empowered to Connect – The Connected Child

 

General Information

National Down Syndrome Society

National Human Genome Research Institute

National Association for Down Syndrome

Kid’s Health on Down Syndrome

Global Down Syndrome – History of Down Syndrome

National Down Syndrome Congress

Special Books by Special Kids

Maya’s Hope – Special Needs Orphan Advocacy

 

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